Featuring

Patient Centricity & Collaboration Global Congress 2021 Europe

Current Trends & Strategies in Patient-centered Drug Discovery and Development

Days
Hours
Minutes
Seconds

8th - 9th November 2021 - 2 Day Conference
London, UK

Exhibit & Sponsor Opportunities
Venue

Hilton London Kensington

Address

179-199 Holland Park Ave, London W11 4UL

Phone

+44 (0) 207 193 3485

Global Congress 2021 Europe

Patient Centricity & Collaboration

Patient-centricity is a vital aspect in the research and development of biopharmaceutical products, disease management, designing a treatment, clinical trial, or other health solutions. In order to create a patient-centric solution, one must truly embrace a collaborative endeavor with the patient and their caregivers. Establishing a patient-centric solution involves getting feedback from real patients and their loved ones, and making decisions based on their medical conditions, experiences, needs, perspectives, and priorities.

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Insights & Attendees

Featuring Key Industry Experts.

Begonya Nafria Escalera

Patient Engagement in Research Coordinator, Sant Joan de Déu Children's Hospital (Spain)

Richard Jones

Patient Engagement Managing Director, Open Health Group

Carole Scrafton

CEO & Co-Founder Patient Advocacy Organisation, FibroFlutters

Pascale Cavillon

Global Patient Centricity Director, Ipsen

All Expert Speakers

From a patient advocacy organization perspective, was a very informative meeting. Learned a lot from presentations and networking that will inform how we can add value to the advocacy-patient-drug developer dialogue.

Dr. Nadine Tutton

Scientific Director, Research, Association for Frontotemporal Degeneration

I was very impressed with the format, the content was interesting and well done. I felt I learned a lot and was glad to be able to attend.

Senior Director

Business Development at Pharm-Olam, LLC

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Patient Centricity & Collaboration 2021 Europe

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Paradigm Global Events is very pleased to welcome you to our upcoming
Patient Centricity and Collaboration Global Congress 2021.

The two-day Congress aims to build meaningful collaborations within the industry, advocacy groups, clinicians, researchers, and most importantly, patients and their caregivers. Gain practical strategies and best practices on challenges, innovations, technologies, and concepts in achieving this goal.           

The congress focuses on “Current Trends & Strategies in Patient-centered Drug Discovery and Development“.

Patient-centricity is a vital aspect in the research and development of biopharmaceutical products, disease management, designing a treatment, clinical trial, or other health solutions. In order to create a patient-centric solution, one must truly embrace a collaborative endeavor with the patient and their caregivers. Establishing a patient-centric solution involves getting feedback from real patients and their loved ones, and making decisions based on their medical conditions, experiences, needs, perspectives, and priorities.

In the current climate where the patients are increasingly becoming more empowered, life sciences and pharmaceutical companies should confront the status quo and welcome the opportunities to embrace a wide range of patient-centered perspectives presented by an emerging ecosystem. While the technology-driven world poses challenges, it also holds opportunities to build a positive patient experience by coordinating the health ecosystem to centre on the patient. Reevaluating how it develops and delivers drugs to improve experiences and outcomes and also to continuously adapt and transform to meet the evolving needs of patients.

The industry has come a long way with utilising a patient-centred approach. The concept has gone from a buzzword to a potential trend, to a perceivable goal. Whilst the industry has advanced in recent years, the evolving healthcare model and ecosystem brought forward by advances in technology and more involved, empowered patients, means true patient centricity is a continuing quest and a compelling commitment.

We look forward to meeting you at the Congress! 

Jocelyn Raguindin
Jocelyn Raguindin

Jocelyn is Conference Director at Paradigm Global Events (PGE). She has over 15+ years experience in organizing pharma-industry conferences and has been at the helm of every PGE conference since 2013. Jocelyn is based in London, UK.

Gain Latest Insights on:

  • What does patient centricity mean for the pharmaceutical and life science industry?
  • Why does the industry need to be a part of the patient-centric movement?
  • Patient-centric initiatives that have a tremendous impact
  • Successful strategies and best practices to successfully manage patient-centricity in healthcare
  • How to develop and execute a strategy to improve patient engagement?
  • Benefits of patient engagement in drug development and discovery process
  • Evolving challenges and key considerations in the ethical and compliant use of relevant data
  • How to achieve a deeper understanding of the patient experience in the real world.
  • How to maintain mutually beneficial ongoing partnerships between the patients and industry?
  • Overcoming myriad challenges to make the clinical trial and drug development process more patient-centred or patient-focused
  • Role of researchers in bridging the communication gap between life science industry and the patient it serves
  • Practical ways in putting the patient at the centre of a powerful brand

Who Should Attend?

  • This Congress is beneficial to patients, pharmaceutical, biotech companies, researchers, physicians, patient advocacy groups, regulatory agencies, technology and healthcare companies.
  • Network with representatives involved in the following areas:
  • Head of Patient Engagement
  • Patient Services
  • Engagement Strategy
  • R&D Patient Engagement
  • Medical Affairs
  • Regulatory Affairs and Policy
  • Patient Support and Patient Engagement
  • RWE, and Data Management
  • Quality and Compliance
  • Clinical Development
  • Programme Management
  • Supply Chain Management
  • Patient Access
  • Clinical Research
  • Global Head, Digital Accelerator
  • Patient Engagement & Portfolio Strategy
  • Patient Support Strategy & Insights
  • Patient Experience
  • Medical Affairs, Global Patient Advocacy & Alliances
  • Government Policy and Advocacy
  • Digital Patient Experience Lead
  • Clinical Operations
  • Clinical Insights and Experience
  • Head of Strategy, Access Services
  • Vice President, Site Collaborations and Patient Centricity
  • Head of Neuroscience
  • And much more...

Begonya Nafria Escalera

Patient Engagement in Research Coordinator, Sant Joan de Déu Children's Hospital (Spain)

She is Patient Engagement in Research Coordinator at Sant Joan de Déu Children’s Hospital (Spain). She has long experience in the field of the involvement of patients and families in research initiatives. She has also a personal story as a caregiver and patient advocate because is the sister of a young adult with cerebral palsy.

Her areas of expertise is focused on paediatric patients involvement in research and specifically in the field of clinical trials.

Other relevant background of her profile is: Fellow of EUPATI (first cohort), Coordinator of eYPAGnet (European Young Patients Advisory Group Network – www.eypagnet.eu), Coordinator of Kids Barcelona (YPAG of Sant Joan de Déu Children’s Hospital- www.kidsbarcelona.org), member of Children’s Medicines Working Party of EFPGCP, a volunteer member of the Editorial Board of Center for Information & Study on Clinical Research Participation (CISCRP), member of the Patients and Families working group of EnprEMA (European Network of Paediatric Research of EMA). Coordinator of the cross-cutting theme of patients involvement in Conect4Children project (pan-European paediatric clinical trials network).

The main aim of all the activities led or participated in by Begonya is to achieve a better quality of life for the paediatric patients’ thanks to research and new therapies.

Richard Jones

Patient Engagement Managing Director, Open Health Group

Leader and patient expert in multi-award winning, research led, patient engagement and health technology business.

Richard is a highly successful, commercially astute leader and problem solver with a proven track record in senior roles in the pharmaceutical industry and healthcare agencies.

Richard combines 20 years’ knowledge from GSK, AstraZeneca and Pfizer with 10 years specialist agency experience.

This unrivalled pedigree enables Richard to quickly understand his client’s business and offer innovative, differentiated and effective solutions. A senior executive, comfortable at operating strategically, above practice and respected by C-level customers.

Richard has a passion for crystallising issues on patient engagement and developing innovative and effective solutions.

Carole Scrafton

CEO & Co-Founder Patient Advocacy Organisation, FibroFlutters

Carole is a patient with chronic and genetic rare disease, Patient Partner, Expert Patient, Patient Speaker, Author and Researcher.

She is the CEO & Co-founder of FibroFlutters Patient Advocacy Organisation for chronic / rare illnesses.  Helping to develop, nurture and advocate for a multidisciplinary approach to all aspects of medical healthcare so that chronic illness & rare disease patients can receive the type of care and treatments that they need.

Carole utilises varying social media platforms to support people with Chronic illness & Rare Disease, #notjustpatients, and with a multi-stakeholder following. A network used for raising disease awareness and sharing as much up to date information.

Carole also advocates for patientcentricity, especially patient engagement best practices and the need for patients to be included within research at early development / preclinical phases.  She recognises the need to help educate patients about clinical trials and the reason why they should get involved.

Recently as a Patient, and with FibroFlutters, was a team member of an initiative to create: ‘How-To guide’. How to implement Patient Engagement into Early Development and Preclinical phases with Patients Focused Medicines Development.

Pascale Cavillon

Global Patient Centricity Director, Ipsen

Pascale Cavillon, PharmD. BCMAS serves as Global Patient Centricity Director at Ipsen. Within the Global Medical Affairs Department, she supports the company to work with patients, for patients throughout the product life cycle from R&D to commercialization. In the past 3 years, she has built and structured the organisation to allow a collaborative work with patients by working directly with patient organization and supporting the Ipsen team to integrate patient voice into their work. Before this position, Pascale was programs director within global clinical development where she initiated the 1st patient advisory board. During the past 16 years, she has worked as a coordinator for regulatory submission and has managed programs, studies from Phase I up to Phase IV in the areas of neurology, endocrinology, oncology, woman health, and cardiovascular.

Pascale Cavillon

Global Patient Centricity Director, Ipsen

Pascale Cavillon, PharmD. BCMAS serves as Global Patient Centricity Director at Ipsen. Within the Global Medical Affairs Department, she supports the company to work with patients, for patients throughout the product life cycle from R&D to commercialization. In the past 3 years, she has built and structured the organisation to allow a collaborative work with patients by working directly with patient organization and supporting the Ipsen team to integrate patient voice into their work. Before this position, Pascale was programs director within global clinical development where she initiated the 1st patient advisory board. During the past 16 years, she has worked as a coordinator for regulatory submission and has managed programs, studies from Phase I up to Phase IV in the areas of neurology, endocrinology, oncology, woman health, and cardiovascular.