Conference Agenda
Patient Centricity & Collaboration - Day 2
Day 2: Tuesday 9th November 2021
- Why diversity and inclusion in clinical trials are crucial?
- Understanding critical barriers to minority and underserved patient communities participation in clinical trials
- Actionable ways to improve diversity in clinical trials
- What can the industry do to promote more diversity in the future?
- Latest guidelines that make healthcare more inclusive
- Major barriers to delivering patient-centred care
- Focus on scaling and spreading proven interventions
- Evidence to move forward and improve care for all patients, in all settings.
- Major barriers to delivering patient-centred care
- Focus on scaling and spreading proven interventions
- Evidence to move forward and improve care for all patients, in all settings.
- Current trends in digital health technology that can improve clinical trial recruitment and retention
- Understanding patient needs to really make clinical trials accessible
- How to maximise the value of technology
- Digital innovation on the horizon
PANELLISTS:
Dr Oleksandr Gorbenko, Global Patient Centricity Director, Ipsen
Thierry Escudier, former Head of Clinical Development, Pierre Fabre
- The importance of data democratization
- Common challenges in clinical data review that hinders clinical trials
- Strategies in overcoming these challenges
- How to seamlessly integrate data from a variety of sources?
- How to improve safety review efficiencies and reduce the timeline to critical studies?
- What it takes to get it right and how to avoid common pitfalls
- Key priorities and opportunities for advocacy during COVID-19 and beyond
- New ways of thinking to ensure the industry remains a credible and valuable partner now and in the future
- Better collaboration between industry and patient organisations leads to improvements in patient care
Panellist:
Victoria Hayes, Public Affairs Director, Kyowa Kirin
14:00 – 14:30, 14:35 – 15:05 –
ROUND TABLE DISCUSSIONS
– divided between 2 sessions of 30 mins. (5mins. to change table) – Attendees have 2 round table options to attend
Led by:
Victoria Hayes, Public Affairs Director, Kyowa Kirin
- The patient community leading research
- Real world data, as provided by patient advocacy and support orgs, determining and highlighting unmet
needs - Patient-led registries and their contribution to the solutions
- Examples of best practice already in existence
Robert Mitchell-Thain, Vice President, Liver Patients International
Senior Representative, NIHR Clinical Research Network
- Two transformational case studies transforming how we think about the role of patients
- Focussed on the why – a purposeful and structured approach to patient engagement
- Models of co-production, pros and cons and why future healthcare providers will be led by patients
Professor Tony Bovaird, Chief Executive, Governance International
Shahid Sardar, Assoc. Director, Patient Engagement & Experience, The Princess Alexandra Hospital NHS Trust
- COVID-19 pandemic has highlighted the need for patient-centricity, understanding the driversfor innovation in pharma
- Partnering with patients and placing patient well-being at the core of all initiatives
- Shifting towards disease-oriented to patient-centric
- Innovative approaches for direct-to-patient assume significant importance for driving patient-centricity
- Technologies that enhance the patient-centricity in pharma